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Pediatric Cystic Fibrosis Program

The Joey O'Donnell Cystic Fibrosis Center at Mass General Brigham for Children is committed to providing first-class, individualized care for each patient with cystic fibrosis.
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617-726-8707
6177268707
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About the program

Cystic fibrosis (CF) is a complex, inherited disease that causes a defect in the electrolyte transport system, leading to problems in the function of many organ systems such as the lungs and gastrointestinal tract. CF affects about 30,000 people in the United States. Although there is no cure yet, comprehensive care has led to improved prognoses for many individuals living with CF and research is providing new insights and new therapies.

The Pediatric Cystic Fibrosis Program at Mass General Brigham for Children is a Cystic Fibrosis Foundation (CFF) accredited pediatric CF clinic committed to providing first-class, individualized care for each patient. We have an established multidisciplinary team to provide preventive care, active management of lung health, nutrition support and psychological support. Optimal treatment is accomplished through frequent outpatient visits with the CF care team, direct communication with families, and educational programs.

The Mass General Brigham Cystic Fibrosis Center is composed of the Pediatric CF Program and the Adult CF Program. Members of these care teams work closely to provide optimal care across all ages, with a fluid transition from the pediatric program to the adult program. For more information on the adult CF program, please visit the Adult Cystic Fibrosis Center page.

Part of Mass General Brigham for Children

Screenings and tests

For families coping with a positive result from a CF newborn screening test, we offer a state-of-the-art system for CF diagnostic testing (sweat chloride testing), and our CF specialists will meet with you the same day to discuss the test results.

For sweat test appointments please call 617-724-0703 or 617-724-2992. Orders can be faxed to 617-724-2803 (ATTN: Sweat Test Laboratory).

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Pediatric cystic fibrosis conditions and treatments

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Conditions and treatments

Our specialists

No matter what disease or condition you have, Mass General Brigham has specialists near you who can help.
An illustration of a care team.
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617-726-8707
6177268707
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Specialists

  • Mass General Brigham for Children

    Mass General Brigham for Children provides care for newborns to teens—from checkups to specialty care—for families in the Boston area and internationally. Learn more about our services.

  • Lung Care

    Receive advanced care for respiratory diseases and critical illnesses from leading lung specialists at Mass General Brigham in Greater Boston.

  • Adult Cystic Fibrosis Program

    Get world-class care at the Mass General Brigham Adult Cystic Fibrosis Program. We offer a seamless transition from pediatric to adult treatment.

  • Pediatric Pulmonary Medicine

    Pediatric Pulmonary Medicine is a well-established clinical, training and research program. The group provides multidisciplinary comprehensive consultation, diagnostic and management services.

  • Bronchiectasis Program

    Get expert bronchiectasis and nontuberculous mycobacteria care at Mass General Brigham. We have specialists and clinical trials to protect your lung function.

  • Pediatric Gastroenterology and Nutrition

    The Pediatric Gastroenterology and Nutrition Program provides multidisciplinary care for children with gastrointestinal, liver, pancreatic and nutritional disorders.

  • Pediatric Feeding and Nutrition

    We offer compassionate care and the latest treatments for children of all ages who have feeding and swallowing disorders (dysphagia). Learn more.

  • Pediatric Genetics Program

    The Medical Genetics Program at Mass General Brigham for Children specializes in the evaluation and care of patients of all ages who may have health problems with a hereditary, genetic, or metabolic basis.

  • Pediatric Aerodigestive Center

    The Pediatric Aerodigestive Center specializes in the treatment of children with voice disorders and airway management symptoms that affect the ability to eat, breathe or speak.

  • Pediatric Infectious Disease and Immunodeficiencies Program

    Mass General Brigham for Children pediatric infectious disease specialists diagnose and treat the full range of infectious diseases and congenital and acquired immunodeficiencies in infants, children, and adolescents.

  • Lung Transplant Program

    Learn about the Lung Transplant Program and our cutting-edge, advanced therapies used to treat patients with end-stage lung disease through transplantation.

  • Pediatric Transplant Program

    The Pediatric Transplant Program at Mass General Brigham for Children is a major referral center for organ transplants for children.

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Contact the Pediatric Cystic Fibrosis Program

Call us to speak with a team member who can help you understand your options and guide you to the care that is right for you. With locations throughout New England and support for patients traveling from outside the United States, we make it easier to access coordinated, expert care.
Phone

Main
617-726-8707

Pulmonary Function and Sweat Chloride Testing Laboratory
617-724-0703
617-724-2992

Adult Cystic Fibrosis Center
617-724-0520

International
International Patient Services
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Contact