The Daniella Lipper ALS PACT Program
617-724-3914
Call the The Daniella Lipper ALS PACT Program
Family-centered support as part of Healey & AMG Center for ALS care
An ALS diagnosis can be challenging for both patients and their loved ones. For parents and grandparents with ALS, supporting children through these changes can add additional complexity.
The Daniella Lipper ALS PACT Program builds on the comprehensive care of the Healey & AMG Center for ALS by providing guidance to adults with ALS who are caring for children aged 0-25 years. Child psychologists work closely with patients and their co-parents to address concerns they have about how ALS will affect their children and provide information to help parents and grandparents support children’s resilience and coping.
Part of the Neuroscience Institute
Our approach to supporting parents of children with ALS
We recognize that parents are the experts on their own children and families. Working together, we can help you:
- Plan how to talk about your condition with children over time
- Anticipate how children may respond to changes and make plans that will support their adjustment
- Recognize when additional support may be helpful to a child
There is no cost to patients for this service, thanks to generous philanthropic support. Most appointments are by phone or video and may include the patient and other adults involved in caring for children and grandchildren in the family. Children do not attend the appointments.
Contact the ALS PACT Program
617-724-3914
International Patient Services
Contact information for international patients